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Unchartered Waters

I became a mother in 2016— a moment that forever changed my life. My son, Mihir, came into this world as a bundle of joy, full of charm and innocence. Like every parent, I had dreams for him, envisioning a life filled with laughter, milestones, and endless possibilities. But by the end of 2018, my world took a turn I hadn’t anticipated. I began to notice subtle differences in Mihir’s development, things I couldn’t quite put into words. In 2020, after a long and uncertain journey, we finally received a diagnosis: Mihir was on the autism spectrum.

Autism is a neurodevelopmental condition that affects social interaction, communication, and behaviour. In toddlers, signs may include limited eye contact, delayed speech, and repetitive movements. As children grow, challenges can manifest as difficulties in understanding social cues, forming relationships, and adapting to changes. For parents, parenting autism involves managing these complexities, often with limited resources and support. Globally, autism diagnoses have risen significantly, with a 178% increase in the past two decades. In India, approximately 1 in 100 children under ten are on the autism spectrum. This growing prevalence emphasises the need for greater awareness, early intervention, and comprehensive support systems to empower families and foster inclusive communities.

When I heard the word “autism,” it was like stepping into a new world without a map. As parents, we were blindsided, and unprepared for the challenges and hurdles that lay ahead. Mihir was a delightful and affectionate child, hitting his early milestones like any other baby. I never imagined that anything could be amiss. But as Mihir grew, the signs became clearer, and so did my questions: Could I have done something differently? Did my choices contribute in any way?

Like many working mothers, I had to make difficult decisions early in my parenting journey. After just six months of maternity leave, I returned to my job, which meant transitioning Mihir from breastfeeding to formula feeding. At the time, it felt like the only option. I told myself he would adapt, and he did. But as I look back now, I wish someone had warned me about the potential risks associated with formula feeding. Could it have made a difference? I’ll never know, but the thought lingers.

Had I known then what I know now about autism, I would have approached so many things differently. Autism is complex and multi-faceted, and its causes are still not fully understood. However many environmental, dietary, and even emotional factors may contribute to its development or trigger its symptoms. As I’ve learned more, I can’t help but think about the choices I made — with a deep desire to do better for other parents and their children.

This journey has given me a new purpose: to share what I’ve learned and support others who might be walking a similar path. I aim to empower mothers, especially those expecting their first child, with the knowledge I wish I had. Recognizing early red flags and taking informed steps can make a world of difference. While we may not fully understand autism, we can work together to build awareness, reduce its prevalence, and create a supportive community for children with special needs.

Mihir’s story isn’t just mine; it’s one many parents share in different forms. As we continue this journey together, let us learn, support, and advocate — not just for our children, but for the generations to come.